A Salute to Our Veterans

According to the Blinded Veteran’s Association (BVA), 13% of wounded U.S. military troops returning from Iraq and Afghanistan have suffered a serious eye injury. In addition, approximately 7,000 veterans become newly blind or visually impaired from non-combat related causes.

 

Big shout out to Serotek for their continued commitment to people with vision loss. Today the company announced that all blinded veterans are eligible for a life time subscription to the System Access mobile Network.

 

And of course, a bigger shout out to all the Veterans, thanks for all you do.

Member Editorial: SOALL Fuels the Soul

 

The following was submitted by a MCCB member. The views and opinions are those solely of the author and may not reflect those of The Monroe County Council of the Blind.

 

This may be a little late but as they say “better late than never”.    

 

The word “SOUL” has many different meanings to which express my feelings towards advocacy, legislation, and leadership.  Until last week I used to sit in the background when it came to politics.  I used to say “let someone else deal with it”, but after this past weekend my soul, spirit, heart and my body have been fueled.          

 

I would like to tell you a true story.  When I was a little girl I saw a kid being beat up by another kid a little bit bigger than her.  Around them were other kids and they were just watching.  It disturbed me to see this, so I got involved and broke up the fight.  The bully then attacked me.  I fought back and won.  I would like to stress that I do not believe that violence is an answer to solving problems.  We then went to the principal’s office and reported the attack. By reporting it the bully got detention and never bothered us again.   So by me getting involved and advocating for other girl

Made a difference.   Now as an adult I am helping in a much larger scale.  I remember a speech that Thomas Reid gave about 4 years ago.  He reminded me that one person can make a difference, that your vote does count and you have to get involved in order to help make things happen.      

 

The issues that we brought to the Hill are very important.    Although we did not get to speak to our Representatives or Senators, the Aids that we spoke to were enthusiastic and sympathetic to the issues we presented.  We hope that they will take that same energy to the Representative or Senator when they present our issues.  I will admit, I was very nervous.  However, after the second appointment I felt better.  After the fright went away I felt good about what we were doing.   We must fight for what is needful.

 

Caroline M. McFarlane         

Advocacy Day in Harrisburg

What a great day!

 

The day began with about 30 or so members of the Pennsylvania Council of the Blind (PCB)heading out from the Radisson Hotel Harrisburg Hershey in Camp Hill to the Capital in Harrisburg . About a 10 minute ride.

 

Part of the initial planning included the development of teams. Each team had a team leader who was responsible for making the appointments with the assigned legislators, both State Representatives and Senators. Additionally, team leaders were responsible for steering the process and assuring all of the participants were fully comfortable with the information and the expectations.

 

Team MCCB consisted of: Marlett who served as a sighted guide and administrator, Caroline, Mary, Linda from the Luzern chapter and Thomas serving as Team Leader.

 

While we would have hoped for meetings with the representatives themselves, the fact that we were scheduled to hit the hill on Thursday, a day in which there is no session, meant that we would more than likely meet with aides.

 

However, experience shows that this could be an extremely effective approach. Aides are the “gatekeepers” of the office and can act as internal advocates if a good relationship is developed.

 

Our first meeting with Rep. Rosemary Brown’s office couldn’t have been any better. Her aide was not only welcoming, but she was engaged in the conversation and went way beyond what was necessary in making us all feel very comfortable. In fact, we met up with her several times throughout the day which concluded with an exclusive touch” tour of the capital in which she arranged.

 

Most importantly, all of those we spoke to were quite positive that the Representative or Senator would be interested in supporting our issues.

 

There is some additional follow up that will need to happen, but we couldn’t have asked for a better day.

 

Personally, the best part of this was watching my team go from being nervous to quite comfortably speaking about the issues. I think I can say that all involved are better advocates.

 

Go Team MCCB!

You Know We Got SOALL!

Beginning on October 19, 2011, members of the Pennsylvania Council of the Blind met for the Seminar on Advocacy Legislation & Leadership (SOALL- pronounced soul).

 

The objective of this seminar is to help members of PCB become more effective advocates. In order to help meet this objective PCB planned a full day of training on the 19th. This included presentations on topics such as understanding the very complicated governmental structure of Pennsylvania, effective methods of advocacy and how to best communicate issues to legislators.

 

Helping PCB explore these topics are representatives of the League of Women Voters, the Disability Advocacy Support Hub (DASH). And Representative Scott Boyd of Lancaster.

 

Following the workshops on Wednesday, PCB statewide members will meet with our State Representatives and Senators to discuss the organization’s position on three specific issues.

 

These include:

 

House Bill H.B. 165- This bill looks to strengthen the penalties for attacks on service animals. Over the past decade many users of guide dogs have reported an increase in attacks to their dogs from other out of control dogs.

 

What many do not understand is the expense both in time and money that goes into training a dog to act as a guide. In many cases after a guide dog is attacked even if not injured, the dog is no longer able to perform their duties.

 

Additionally this can greatly impact the guide dog user’s fear level and reduce his or her independence.

 

Support for maintaining the Bureau of Blindness and Visual Services – In times of budget cuts, several states have allowed blindness service agencies to be absorbed into agencies providing services for other disabilities.

 

Services provided by blindness agencies are very specific.

 

Therefore PCB would like to assure that any future consolidation efforts do not include BBVS.

 

Public transportation is a very important service for people who are blind or visually impaired. It is often the key providing access to employment, community involvement and in general independence.

Increased and dedicated funding to improve public transportation will greatly impact the blind and visually impaired community.

 

Whether in urban or rural environments, PCB supports the increase of funds to improve and further expand mass transit.

 

All in attendance had the opportunity to absorb both general information that will help produce better advocates as well as specific details to help disseminate our issues on the Hill.

 

Congratulations to former MCCB member Mary Ann Alexander for leading a very successful seminar!

A Loud Roar for the Tannersville Lion’s

Recognition for working in the community is great, but dedicating funds, now that’s supporting the mission!

The funds received from the Lion’s Pancake Breakfast fundraiser, held in February, were donated to MCCB.

This will help us promote our Open Forums and the Vision Loss Support Line – each designed to provide information and resources to the community.

And even just as important, this will hopefully be the beginning of a relationship between the two organizations, resulting in a better Monroe County for all!

Another Successful Forum

This past weekend, MCCB sponsored our second Open Forum on Vision Loss.

This event offers anyone impacted by vision loss an opportunity to learn specific strategies and technology to aid in their daily lives. Most importantly, it’s an opportunity to learn from people with direct experience.

Once again, it comes down to information. Whether a person has just received a diagnosis or has been coping with their loss for years, an awareness of the available tools can greatly reduce their fear. Maybe even greater, offer a positive outlook on life and an understanding that life does not end with the loss of vision.

The turnout was good, and included men and women with various degrees of vision loss.

One notable discussion focused on MCCB’s belief that advocating for access on all levels is an integral part of improving the lives of people with vision loss. It was evident that most in the group also understand the significance of those with vision loss leading these efforts.

We look forward to offering more forums and spreading our positive message to more in the county.

Open Forum on Vision Loss

An event for those who are interested in learning innovative ways to:

• Cope with vision loss

• Increase your Independence

• Improve transportation options

 

We are a group of individual’s with various degrees of vision loss inviting all those impacted by (including family and friends) or experiencing change in vision to an open dialogue.

 

Date: April 9, 2011

Time: 11:00 – 1 PM

Place: Eastern Monroe Public Library (Board Room)

 

Refreshments will be served.

 

This is a Free event. Call (570)421-4118 for more information.

ACB Seminar 2010: A Summary View

- The below recap was submitted by Mary Ann following Monday’s session of the ACB Legislative Seminar.

Sunday:

While blind and other print impaired folks in the United States enjoy thousands and thousands of books in accessible format, this is quite untrue for the visually impaired and otherwise print impaired persons in other countries.  For instance, in Nicaragua, there are probably only 400 books which have been made available in alternative formats.  James Love, director of an organization called Knowledge Ecology International discussed a proposal for a treaty to provide for sharing books over borders which for now is not happening because of the road blocks erected by publishers, authors and copyright laws.  As a reader, I find this concept so terribly sad.

In keeping with some of our own advocacy efforts, ACB in conjunction with NFB and other organizations have to their credit a victory against Arizona State regarding the use of the KindleII EBook reader which, while it provides text to speech output, currently has onboard controls which are not accessible to persons with limited vision.  The university which heretofore refused to negotiate with the ACB or other organizations has been made to cease using this device in its classrooms until such time as it becomes accessible to those with limited vision.  Following suit are several universities around the country who, without the necessity of legal action have decided on their own not to use this device in their classrooms until or unless it should be come accessible to the vision impaired.  As a result, by summer it is expected that the KindleII will have onboard controls which will be fully accessible to persons with visual impairments.

For more information on structured negotiations, both ongoing and in the future, go to www.lflegal.com

Monday:

On Monday, we were introduced to a couple of different hill officials.  The first of these was Lynnae Ruttledge, Commissioner of Rehabilitation Services Administration at the U.S. Department of Education.  Lynnae comes to us with a great deal of experience in the field of disabilities.  She was a former director of the Washington State VR agency.  It would appear that she intends to be accessible, a good listener and as such, ACB is cautiously optimistic that she will be a positive influence to officials in this administration.  She spoke intelligently about the needs of persons with visual impairments, even regarding such issues as the vending program.

We heard from Congressman Edolphus Towns’ Legislative Aide who assures us that the Congressman continues to fight diligently to see that the Pedestrian Safety Enhancement Act (H.R.734) is passed.  The consensus is that we should be requesting of our representatives that this matter be brought to hearing.  We currently have 197 sponsors.

Our luncheon speaker was perhaps one of the most interesting of all.  Kathy Martinez is the Secretary of the Office of Disability Employment Policy, U.S. department of Labor.  Kathy informed us of efforts being made within the Veteran’s Administration to increase the money available under section 503 of the rehabilitation act which deals with accessibility in the work place and to technology in the work place.  The money has increased from an insufficient amount of $850 thousand to $8.5 Million to address this problem.  She described a major effort that the federal government is making to find people with disabilities jobs.  On April 26, 2010, there will be jobs listed from 28 federal employers with applications online in accessible formats and on the spot interviews.  For more information on this and other efforts being made by this office, go to:

www.dol/odep.

Any of you who have read my email and last year’s blog post from this very seminar are already familiar with the two imperatives which, as last year are H.R. 734, the Pedestrian Safety Enhancement Act and H.R.3101, the 21st Century Communications and Video Accessibility Act.  Much of this year’s discussion was centered on how best to combat some of the common road blocks put to us by representatives. 

For instance, with regard to H.R.3101, when speaking with a republican, remind them that first and foremost, it’s just the right thing to do, it is a non-partisan issue.  Further, it will allow companies, large and small to compete for the business of the population interested in purchasing devices which are accessible to those with sensory impairments.  When speaking democrats, who so far are the only co-sponsors of 3101, words like inclusion, a level playing field for higher education and opportunities for those who might be disadvantaged are the key phrases to use.

With regard to H.R.734, simply that it’s absolutely a necessity to keep pedestrians safe.  Further, this effort does not directly cost the government anything at all.

Our last speaker was the engaging Mark Richert from the American Foundation for the Blind who spoke on healthcare reform as it relates to the blindness community.  Unfortunately, of the three issues which most concern the blindness community, prescription labeling, funding by Medicare for low vision aids and funding for such services as rehab teaching and orientation and mobility, only funding for low vision aids is addressed at all and in this, there is such vague language as to almost be non-existent.

So there you have it, a legislative update in a nutshell.

- Mary Ann

ACB Seminar 2010: On Schools for the Blind

The ACB Legislative Seminar began today with the State Affiliate’s President’s Meeting.

One of the most interesting discussions focused on the state of schools for the blind.

The closing of the Oregon School for the Blind and other schools that are threatened with extinction, calls out for a need for more advocacy.

The position of ACB appears to be, not whether or not schools for the blind are more effective than main streaming, but rather parents of children who are blind should have a choice.

What I have heard from those who attended these schools, is that schools for the blind were the right place for them at a given time in their life. These schools, it is said, provides individuals with very specialized training including Braille and orientation and mobility. Another benefit of these schools is that it provided a place for these children to fit in without standing out simply for their blindness.

Sounds like we’ll hear more in the future from ACB regarding schools for children who are blind.

ACB Going Back to D.C

It’s that time of year again, when ACB members gather in Washington DC. Walking the halls of Congress to present the issues that are impacting people who are blind and visually impaired throughout the country.

 

An empowering 4 days, where a message of independence is delivered not only to our nation’s representatives, but all of those in the capitol who interact with a determined and well informed group of advocates.

 

As in the past, MCCB has once again sponsored delegates  to attend the week end seminar. Mary Ann will again provide feedback and share information with  the local chapter, which we in turn share with our readers.

 

The 2010 ACB Legislative Seminar officially kicks off on Saturday with the state affiliate President’s meeting. Check back throughout the weekend and next week for updates and analysis.