Stepping Through the Hill: 2013 ACB Legislative Seminar Day 3

For those not familiar with the back work that goes into visiting our Pennsylvania Representatives during the Legislative Day, here’s a brief summary.

 

Once the delegation has been selected, each attendee is responsible for making appointments with their assigned legislators.

 

This usually involves a phone call to the legislator’s office to determine the name and email of the office scheduler. All appointments are required to be made in writing.

 

We have seen this process go very smoothly requiring little in the way of follow up. On the other hand, sometimes multiple written request and phone calls are necessary. Even then an appointment is not guaranteed.

 

The opportunity to meet directly with a Legislator is rare. Usually, meetings are made with Legislative Aides or Directors. In the event that an appointment cannot be scheduled, it is worth just showing up in the Legislator’s office and asking to speak with an aide. If they are not available you can leave documentation detailing the imperatives.

 

This year, I was only able to obtain 2 out of 5 appointments. No worries!

 

In Congressman Barletta’s office, the request to speak with a Legislative Aide was initially rejected. After leaving materials and getting the Legislative Director’s contact information we left the Congressman’s office. Following a brief visit to the rest room, the Legislative Director Kelly approached me in the hallway. She asked if I just tried to meet with her. We spoke casually for a few moments when she invited us back into the office to discuss the imperatives. Coincidentally she is very passionate about disability and education related issues.

 

The lessons learned this year:

  • “Appointment? We don’t need no stinking appointment!” – There’s no loss to asking for a meeting at the office if an appointment could not be scheduled.
  • Speak Up! – Take any opportunity to talk about the issues. You never know who is listening.

 

The last step in the meeting process is always the follow through. In the experience cited above and every other meeting, following up with the person attending the meeting is essential. It can make the difference in advancing your issue. Remember, Legislators have hundreds of issues being brought to their attention. Keeping your as high on the to do list as possible is the goal.

Educating Ourselves and Others: 2013 ACB Legislative Seminar Day 2

Fundamentally, advocates are educators.

 

It all starts with educating ourselves. In the case of this week’s effort in D.C., members of the Pennsylvania Council of the Blind delegation are preparing to discuss specific issues with our representatives.

 

Issue 1:

The Need for Medicare to Cover the Purchase of Certain Low Vision Devices.

 

Ask someone with vision loss about the impact low vision devices like a CCTV, video magnifier or other specialty aids have made on their lives and you will hear responses like:

“My CCTV allows me to independently access my mail and other printed documents”

“I can shop by myself and no longer require assistance now that I have a magnifier that I can take to the supermarket.”

 

Baby Boomers are the growing population of people with vision loss. Many are on fixed incomes and cannot afford the low vision devices that can dramatically change their lives. Often the aids allow them to remain independent and active in the community.

 

As a result of general modifications to Medicare policy, devices with lenses are not covered. This was a policy enacted prior to the development of the various devices available today.

 

ACB is seeking a national demonstration project to determine;

  1. Determine the true population of people with vision loss that can benefit from low vision devices
  2. Develop best practices for implementing such a policy

 

Issue 2:

The Need for Comprehensive Special Education Legislation

Children with vision loss have unique education needs.

 

ACB is supporting the introduction of the Ann Sullivan Macy ACT. This effort promotes expanding the core curriculum to include blindness specific skills or adaptations to aid blind children.

 

Additional sections of this act assure that schools and teachers are better supported including continuing education for Teachers of the Visually Impaired (TVI).

 

Now that we are educated on the issues, the next step is to inform our representatives tomorrow on the “Hill”.

Teaming Up for 2013 ACB Legislative Seminar

The sight of men and women pulling rolling suit cases up to a hotel registration desk is familiar to many. Add white canes, furry guide dogs and others grasping the elbow of a sighted person and now this may appear out of the ordinary for some unfamiliar onlookers.

 

Here now, for the first time, we will present the seminar from an alternative perspective. Rather than focus on the presentations and materials that you can listen to live or on demand after the seminar, my wife and sighted guide for the visit to the Hill, will give you her perspective.

 

I now present to you Marlett Reid.

 

As a guide my duties really begin on Tuesday, the day on Capitol Hill. I’m responsible for guiding us to the Hill from the hotel, locating all of the representative’s offices and in general providing information that can only be obtained from sight. Hands held out for a greeting or exchange of a business card, detour signs or notices posted on doors are just a few examples.

 

At the hotel, I enjoy watching the way people work together. For example, several ACB members get off a bus and make their way into the hotel. As though they rehearsed, they line up in single file. Each person has their hand on the shoulder of the person in front of them. The lead is guided by a hotel staff member. In tight military precision, they walk into the hotel ending at the registration desk. Each individually checks in and receives their room key. Team work!

 

In the meeting room, everyone uses adaptations to find others in their delegation, old friends or maybe an available seat.

 

For some this process may appear awkward. Here, it’s normal.

 

“Las Vegas,” one young woman walking with a guide dog calls out in search of her delegation. When her colleague hears her call, the response is her audible beacon guiding her to her destination.

 

Never make the mistake and ask for regular print. Here regular is Braille, digital files and large print.

 

If you’re interested in seeing the latest in technology and how it is used by people with vision loss, this is the place. Laptops, Braille displays, note takers, iPhones and digital book players are in use by many. Accessing the internet, posting to Face Book and Twitter and even just checking the time; these devices do it all.

 

All of the seats are full. Old friends becoming reacquainted, new friendships being formed; no one is ever left alone to find their way.

 

It’s no wonder that over the years, the individual’s making up ACB have been successful. Legislation and advocacy projects implemented through the core value of working together as a team.

ACB Legislative Seminar: Hill Report

for final recap of the day on Capitol Hill check out this audio

 

T.Reid

ACB Legislative Seminar 2012 Day 2 – Get Ready, Get Set…

Day 2 of the ACB Legislative Seminar was jam packed with information.

 

The day began with a helpful discussion of what to expect on the Hill tomorrow along with some interesting information to help traverse the various buildings.

 

For example, the first 2 digits of a representative’s office room number indicate the building and floor respectively. Longworth numbers start with 1, Rayburn with 2. Even if you don’t plan on visiting, this could be useful in a game of trivia or during your next cocktail party!

 

For those who have never visited a Legislator, the expectation of a meeting and the reality are two very different things. I remember my first year, I thought we would be invited into a large office and seated on a plush leather couch. I imagined the Legislator seated behind his Mahogany desk, smoking a cigar while he and a stuff Deer head, (4 pointer) both look down at the nervous advocates trembling on the couch.

 

Ok, maybe I watched too many movies as a child. In reality, chances are that you won’t even sit down, be in an office or even meet with the representative. In most instances, you will talk to a Legislative Aide in the reception area, sometimes in the hallway, or in some other ad hoc location. It’s far from a comfortable private encounter. You have 15 minutes to get your point across and convince the aide that your issue is something that deserves the support of the representative.

 

I strongly suggest that everyone check out the archive of the seminar for more information. There’s way too much for me to recap.

 

Following the presentations, the PCB team finalized some very important transportation details and strategy.

 

We’re all looking forward to a positive day on Capitol Hill.

 

Go PCB…Can’t Stop…Won’t Stop!

 

T.Reid

ACB Legislative Seminar – Day 1 – All About the Pasta

The first sentence, that’s the most difficult. So today I decided to ask Marlett for her input. Her first thought was of the ACB Legislative Seminar in 2007. “I remember how powerful the speaker was the first time we attended the seminar.”

 

This seminar didn’t begin with presentations on the history of systematic destruction of people with disabilities throughout the world, but rather something much more relevant to our current time, the results of an ACB/Google Survey to Find Computer Usage and Assistive Technology Patterns among Blind and Visually Impaired People.

 

As many of us know, technology provides the opportunity to “level the playing field.” Pratik Patel, Chair of ACB’s Information Access Committee, provided the group with some very interesting statistical information regarding computer usage in our community. Look for some in depth analysis of the information gathered along with how this can impact people with vision loss in the Braille Forum – the ACB publication.

 

Personally I am a fan of any presenter who can inject fun and humor into an otherwise serious topic. Mark Richert, Director, Public Policy, American Foundation for the Blind (AFB) found a way to not only hold the audience’s attention, but he actually entertained us with impressions prior to his presentation.

 

In no way was there anything funny about his topic; Looking at the Future of Special Education Policy.

 

I would strongly recommend those of you reading this to check the ACB Radio archives to hear the presentation for yourselves.

 

On that note, make sure if you’re able, tune into the live coverage aired on ACB Radio World.

 

One of the best parts of any convention or seminar is the opportunity to just hang out with PCB members.

 

The PCB crew along with Jay Dowdna, a PCB past president and current President of the Oklahoma affiliate had a chance to share a Sunday dinner at The Portofino Restaurant.

 

I’m sure we will all appreciate the energy gained from all that pasta during our full seminar day tomorrow.

 

T.Reid

ACB 2012: Presidents Meeting

It figures one of the only days that I was in the midst of a good sleep (this does not happen very often) I would get the nudge from my wife waking me up. “It’s time to get ready” she said.

 

We arrived in Virginia, just outside of DC before noon. The drive wasn’t bad, easy for me to say, I was asleep about 15 minutes after filling the gas tank. Marlett and her trusty GPS did a great job getting us here safely.

 

After settling in and getting a bite to eat, we crashed the President’s meeting already in progress. The Legislative Seminar officially kicks off Sunday afternoon.

 

There were several presentations from various ACB committees. Each geared to empower state leadership with information to apply to their affiliates.

Two topics of interest and applicable to the local chapters were:

  • Updated Pedestrian Safety Handbook – A comprehensive resource for all chapters interested in advocating for Accessible Pedestrian Signals. It is clear that a lot of time and energy was put into this new document.
  • Responsibilities of Treasurers and Other ACB Affiliate Officers – This very detailed topic included information regarding 501c3 status and insurance requirements.

 

Stay tuned for the next update, I’m hoping to do something a little different.

 

T.Reid

Heading to ACB National Legislative Seminar 2012

Four teams from the Pennsylvania Council of the Blind will head to Washington DC this weekend for the ACB National Legislative Seminar.

I have the pleasure of representing both PCB and MCCB.

On Tuesday ACB advocates will meet with both members of Congress and the Senate in order to inform them on two specific issues;

  1. HR 860 – Essentially this bill is meant to promote charitable donations of qualified vehicles which are a significant source of revenue for nonprofit organizations. A change implemented in 2005 showed that the number of automobile donations declined 67 percent from the previous year, from about 900,000 in 2004 to 297,000 in 2005. The IRS further reported that the value of charitable deductions claimed by taxpayers for these gifts dropped by 80.6 percent, from $2.4 billion to $470 million. In short, taxpayers donated far fewer cars–and disproportionately withheld cars of greater value to the charities.
  2. Prescription Drug Labeling – Under ACB’s draft legislative proposal, representatives of consumers and pharmacies and federal regulators will convene a working group. This group will establish “best practices” for pharmacies to ensure that people who are blind or visually impaired have access to prescription drug labeling. In other words, the group’s recommendations would provide evidence-based guidance to pharmacists on actions they can take to ensure that the blind or visually impaired understand the information on their prescription and they can access this information independently. The guidelines should provide pharmacies a range of options they can choose to offer consumers, as well as allow additional flexibility for smaller pharmacies. Many of these options are low-cost, widely-available, and compatible with equipment already in pharmacies.

The working group would consider options including:

  • Enhanced visual aids such as large-print font, sans-serif font, and high-contrast printing

  • Non-visual aids such as braille

  • Auditory aids such as digital voice recorders attached to pill bottles, “talking bottles” that provide audible label information, and Radio Frequency Identification (RFID) tags or auxiliary smart labels, which are programmed, printed, and affixed to a prescription label container by a pharmacist. These labels can then be accessed by the consumer privately and independently, using a hand-held device that reads out the label information.

I am hearing today that Congressman Markey will introduce prescription drug legislation on Monday, February 27. This will give us something specific to request of our Representatives.

Stay tuned for more information and comments on this year’s seminar.

T.Reid

Eastern Monroe Public Library Gets REAL

Kudo’s to our local library for their participation in a new project of the Institute on Disabilities at Temple University in Philadelphia, PA, called “Get REAL– Regional Education Assisting Life Long Learning.”

 

Creating a welcoming environment for people with vision loss is not new to the Hughes Library. Several years ago, they installed a computer with both screen reader and magnification software.

 

This recent participation in the Get REALL program is their next step, along with upgrading their computer equipment, to increase access for all who are print impaired within the Monroe County community.

 

On Saturday March10, MCCB will host our first Open Forum on Vision Loss of 2012. This will take place in the Board Room of the Eastern Monroe Public library.

 

A representative of the EMPL will be there to feature the devices they have available to lend.

 

Of course, members of MCCB will discuss real world application for these devices as well as other high and low tech products.

 

Feel free to call for more information (570)421-4118.

 

As always, free refreshments will be available.

A Salute to Our Veterans

According to the Blinded Veteran’s Association (BVA), 13% of wounded U.S. military troops returning from Iraq and Afghanistan have suffered a serious eye injury. In addition, approximately 7,000 veterans become newly blind or visually impaired from non-combat related causes.

 

Big shout out to Serotek for their continued commitment to people with vision loss. Today the company announced that all blinded veterans are eligible for a life time subscription to the System Access mobile Network.

 

And of course, a bigger shout out to all the Veterans, thanks for all you do.