ACB Seminar 2010: A Summary View

- The below recap was submitted by Mary Ann following Monday’s session of the ACB Legislative Seminar.

Sunday:

While blind and other print impaired folks in the United States enjoy thousands and thousands of books in accessible format, this is quite untrue for the visually impaired and otherwise print impaired persons in other countries.  For instance, in Nicaragua, there are probably only 400 books which have been made available in alternative formats.  James Love, director of an organization called Knowledge Ecology International discussed a proposal for a treaty to provide for sharing books over borders which for now is not happening because of the road blocks erected by publishers, authors and copyright laws.  As a reader, I find this concept so terribly sad.

In keeping with some of our own advocacy efforts, ACB in conjunction with NFB and other organizations have to their credit a victory against Arizona State regarding the use of the KindleII EBook reader which, while it provides text to speech output, currently has onboard controls which are not accessible to persons with limited vision.  The university which heretofore refused to negotiate with the ACB or other organizations has been made to cease using this device in its classrooms until such time as it becomes accessible to those with limited vision.  Following suit are several universities around the country who, without the necessity of legal action have decided on their own not to use this device in their classrooms until or unless it should be come accessible to the vision impaired.  As a result, by summer it is expected that the KindleII will have onboard controls which will be fully accessible to persons with visual impairments.

For more information on structured negotiations, both ongoing and in the future, go to www.lflegal.com

Monday:

On Monday, we were introduced to a couple of different hill officials.  The first of these was Lynnae Ruttledge, Commissioner of Rehabilitation Services Administration at the U.S. Department of Education.  Lynnae comes to us with a great deal of experience in the field of disabilities.  She was a former director of the Washington State VR agency.  It would appear that she intends to be accessible, a good listener and as such, ACB is cautiously optimistic that she will be a positive influence to officials in this administration.  She spoke intelligently about the needs of persons with visual impairments, even regarding such issues as the vending program.

We heard from Congressman Edolphus Towns’ Legislative Aide who assures us that the Congressman continues to fight diligently to see that the Pedestrian Safety Enhancement Act (H.R.734) is passed.  The consensus is that we should be requesting of our representatives that this matter be brought to hearing.  We currently have 197 sponsors.

Our luncheon speaker was perhaps one of the most interesting of all.  Kathy Martinez is the Secretary of the Office of Disability Employment Policy, U.S. department of Labor.  Kathy informed us of efforts being made within the Veteran’s Administration to increase the money available under section 503 of the rehabilitation act which deals with accessibility in the work place and to technology in the work place.  The money has increased from an insufficient amount of $850 thousand to $8.5 Million to address this problem.  She described a major effort that the federal government is making to find people with disabilities jobs.  On April 26, 2010, there will be jobs listed from 28 federal employers with applications online in accessible formats and on the spot interviews.  For more information on this and other efforts being made by this office, go to:

www.dol/odep.

Any of you who have read my email and last year’s blog post from this very seminar are already familiar with the two imperatives which, as last year are H.R. 734, the Pedestrian Safety Enhancement Act and H.R.3101, the 21st Century Communications and Video Accessibility Act.  Much of this year’s discussion was centered on how best to combat some of the common road blocks put to us by representatives. 

For instance, with regard to H.R.3101, when speaking with a republican, remind them that first and foremost, it’s just the right thing to do, it is a non-partisan issue.  Further, it will allow companies, large and small to compete for the business of the population interested in purchasing devices which are accessible to those with sensory impairments.  When speaking democrats, who so far are the only co-sponsors of 3101, words like inclusion, a level playing field for higher education and opportunities for those who might be disadvantaged are the key phrases to use.

With regard to H.R.734, simply that it’s absolutely a necessity to keep pedestrians safe.  Further, this effort does not directly cost the government anything at all.

Our last speaker was the engaging Mark Richert from the American Foundation for the Blind who spoke on healthcare reform as it relates to the blindness community.  Unfortunately, of the three issues which most concern the blindness community, prescription labeling, funding by Medicare for low vision aids and funding for such services as rehab teaching and orientation and mobility, only funding for low vision aids is addressed at all and in this, there is such vague language as to almost be non-existent.

So there you have it, a legislative update in a nutshell.

- Mary Ann

ACB Seminar 2010: On Schools for the Blind

The ACB Legislative Seminar began today with the State Affiliate’s President’s Meeting.

One of the most interesting discussions focused on the state of schools for the blind.

The closing of the Oregon School for the Blind and other schools that are threatened with extinction, calls out for a need for more advocacy.

The position of ACB appears to be, not whether or not schools for the blind are more effective than main streaming, but rather parents of children who are blind should have a choice.

What I have heard from those who attended these schools, is that schools for the blind were the right place for them at a given time in their life. These schools, it is said, provides individuals with very specialized training including Braille and orientation and mobility. Another benefit of these schools is that it provided a place for these children to fit in without standing out simply for their blindness.

Sounds like we’ll hear more in the future from ACB regarding schools for children who are blind.

ACB Going Back to D.C

It’s that time of year again, when ACB members gather in Washington DC. Walking the halls of Congress to present the issues that are impacting people who are blind and visually impaired throughout the country.

 

An empowering 4 days, where a message of independence is delivered not only to our nation’s representatives, but all of those in the capitol who interact with a determined and well informed group of advocates.

 

As in the past, MCCB has once again sponsored delegates  to attend the week end seminar. Mary Ann will again provide feedback and share information with  the local chapter, which we in turn share with our readers.

 

The 2010 ACB Legislative Seminar officially kicks off on Saturday with the state affiliate President’s meeting. Check back throughout the weekend and next week for updates and analysis.

Member Editorial: It Should Be Routine!

The following was submitted by a MCCB member. The views and opinions are those solely of the author and may not reflect those of The Monroe County Council of the Blind.

I work Monday through Friday from 8:00 a.m. to 3:30 p.m. in an office, that’s routine enough. Well, how I get there and back is not so routine. Three days a week, Tuesday, Wednesday and Friday I travel to work and back with the Pocono Pony, specifically the Program for Persons with Disabilities (PWD).

On Mondays and Thursdays I have to wing it inasmuch as finding a way to work is concerned. Well it would appear that the MCTA is using a new computer system to schedule runs, without having worked out all of the bugs. First let me say that things had been going along fine for more than 6 months with a regular driver, a very nice and considerate driver at that. So, back to the new system.

On Tuesday morning I had just halled myself out of bed, it was 6:25 a.m. and was just about to make a pot of coffee when my daughter informs me that the shared-ride vehicle was in the drive way. My normal pick-up time is 7:40 or thereabouts. So, right away you see the problem. There I am, still in my night clothes, not showered, in no way able to leave for work. I opened my window to address the driver who had stepped out of the vehicle for a cigarette and this is how the conversation went.

(me) Morning, you know you’re an hour and ten minutes early

(him) so?

(me) So? What do you mean so? I can’t go with you now, I just got out of bed.

(him) Well, I can’t come back.

(Me) Well, I’ll go call dispatch.

(him) yeah, well I’ll call too)

(me) Well fine!

After some back and forth on the phone with a dispatcher who expected she could take her frustration regarding the new system out on me, we established that the driver would be back in an hour. You know, it just seems that getting to work should not be so difficult, it should not leave one without his or her dignity. Obviously the driver got to work as did the dispatcher, shouldn’t it be just as routine for me?

- Mary Ann Alexander

Allow Everyone Access to E-books

Please consider signing the petition started by the  Reading Rights Coalition.

 

This organization began after Amazon released their latest version of their E-Book reader, the Kindle 2.0. The product which has built in Text to Speech has been attacked by the Author’s Guild. The Guild argues that this feature which uses synthetic speech to read the contents of a book,violates copyright laws. The Author’s Guild contends that the use of  speech makes this an audio book which would require additional licensing fees.

 

A coalition of organizations including both Blind Consumer groups has  been established to reverse the decision made by Amazon, after pressure from the  Author’s Guild, making the TTS feature an option controlled by the book Publisher. The Kindle 2.0, with additional accessibility features, would enable people who are blind as well as others with various print disabilities, to have immediate access  to print materials. Amazon recently reported that they are working to make the Kindle accessible. It’s wrong that  the Author’s Guild and what seems to be their desire for more money, would restrict those of us who want access to printed materials.

A mainstream product with built in accessibility features would be a major step that other consumer electronic companies can emulate. Universal design, access for all – that’s a beautiful concept!

 

Sign the petition to show your support. The Reading Rights Coalition is looking for 10,000 signatures.

 

Allow Everyone Access to E-books – The Petition Site

 

Reading Rights Coalition Plans Protest in NYC

Member Editorial: The Trials of Transportation – Continued

The following was submitted by a MCCB member. The views and opinions are those solely of the author and do not reflect those of The Monroe County Council of the Blind.

 

In my last entry, when talking about getting to the MCCB meeting, I said, I will get there. Well this is how I got there, but first, I must give some background .
A few days before the March 13 meeting I sent the  previous blog entry out to our list serve so that the members can know what happened to me. I got many responses, but most of them were basically. a version of "Ask your wife to bring you, or Why don’t you just call VIABL" I kindly and simply said no. But one of the comments stood out.It went like this:
Hi Mike,
        I feel for you Mike.  Have you tried to call VIABL?  That would be the only other option I can see for you.
(sender withheld)
I sent the following response:
No I have not. I am sure that is not the only option blind people have. If it is, that is what is Truly sad. I will get to the meeting, but what if while I am out, I  get hungry  and want to go to a fast food restaurant, or should want to run some errands or need a haircut or need to go to a printer or gallery, or want to stop at Staples or need to go to Home Depot or Lowes or I have to bring a video back to the library. Maybe my daughter needs me to stop something over to her school. Maybe I want to get my beautiful wife some flowers just because, or maybe I want to sit in a park so I can think, or maybe I want to go to a gym, or want to stop at a local farm to get some fresh fruit, Maybe they let you pick them yourself, or go to a bank, or just what if.  You understand.
I have nothing personal against VIABL or anyone for that matter. I just want to be independent!
(end)
Well, I chose to utilize our public transportation system, or in other words, "the bus". In Preparation for our 10:00am Friday meeting, I called the bus company (MCTA)in order to ask them about the pick up and drop-off places and times, Which had recently changed. (Now pay close attention ’cause this part gets a little complicated)I was told that I had to catch the orange route bus at the Monroe Plaza at 6:55 a.m., get a transfer, and it would arrive at the Stroud Mall at 7:20  a.m.  Then to get on the red route bus at 7:35 a.m. and that it would arrive at my destination at 7:55 a.m. (Grace Park Senior living facility) where the meeting was to be held.   Now, if this worked out this way, although it is a time consuming effort , and way too much time, a person with a Visual disability could maintain his/her dignity and keep  some form of  independence.
Wanting to make sure that I had all of my information correct, I called the bus company two additional times.  I went to bed early, with anticipation of the next days events.
My trip started Friday morning with my wife agreeing to drive me to  Monroe Plaza bus stop at 6:40 a.m.   I waited patiently with my cane and backpack att the sign. it was  cold, 23 degree whether, but, I maintained a smile on my face. My wife decided to wait until the bus arrived, I assured her that I was OK but she continued to wait anyway. She commented about the speed in which the Route 209 traffic was traveling."be careful, they are going about 60mph".  I must have been no more than two feet away from the traffic. Precisely at 6:55 a.m. She yelled to me from where she waited "the bus is coming , wave your hand" I did that . The bus approached at the same speed as the other cars. It continued pass me as if my 250 lbs did not matter. It did not stop! My wife said the sign on the bus read "Route changed" How prophetic, . How was I to know the the change would be my own. I called the company.After listening to some recorded phone prompts I spoke to a dispatch person named Sheri. She called the bus driver. I could hear him( you know we have super sonic hearing) as He said "I approached the stop, I slowed down and there was no one there" that’s just  an untruth.  She however did quickly dispatch a shared ride van to pick me up. Sheri said he would be there in about a half of an hour.  I told my wife to go on back home.            I left a complaint on  the Supervisor, Walter’s answering machine.
The Driver drove in to Stroudsburg about 8: 00 a.m. Being to early to go in to Grace  Park, I asked him to drop me off at the Perkins restaurant, which was about three blocks and across the street from the meeting place. 
Well I had a great Breakfast.     Shortly after 9:00 a.m. I went over to the meeting place. I Got there!    For me this kind of experience has repeated itself far too many times. I like the thought of being free. Free to make choices.
My trip home had adventures of it’s own. Now many may say, this is much ado about nothing , but I for one am tired of the transportation issue playing such a large part of our lives. I plan to be instrumental in changing this for us . If this is what it has to be, in order for me to get around, than so be it.

 

- Michael Bryant

Member Editorial: The Trials of Transportation

The following was submitted by a MCCB member. The views and opinions are those solely of the author and do not reflect those of The Monroe County Council of the Blind.

 

early Monday morning, I called Diakon. To you who are not familiar, this is a service that provides assistance to people who are  seniors or to folk who are disabled. Some of the available services are  ;help around the house, both in or out, also they provide transportation with in a fifty mile radius. I was told that the transportation was not for all of Monroe County, but for people who live in the West End. Myself , as well as a few of our members, regularly utilize them for their transportation needs. For me they were great!, because I could use them for many of my travel needs.

On Monday Morning I called Diakon to leave a message, asking for a ride to the MCCB meeting  on Friday March 13th, at 10:00am. I got a call from the area coordinator on  Tuesday evening about 9:30pm. My conversation started with the usual niceties, then quickly moved to the issue. The woman first asked me if I had my date wrong for the Friday meeting. I said that our meetings are always on the second Friday of each month. She mentioned that a member whom,I will not name was going to get a ride tomorrow to a meeting in Stroudsburg. Not knowing how this related to me, I said that I was sure that the meeting I was to go to was on Friday.  She got to her point. She said that the new policy was to provide transport to people who are sixty years old or older.
She added, if I can find a person who was sixty to go with , I could go to the meeting or to other places . What!?, I thought.   she repeated her comment.
I said No! that I would not travel in this manner. A travel With Stipulations, to me this sounds crazy.  I told her that I was Visually impaired  , and in my forties, I can not help it that I am not Sixty.
I thanked her for providing some transportation  need in the past, but, as for me,   this will end any need for their services, well that is,  until I am old enough.

I, after hanging up the phone, I could only think of you guys out their who have experienced a similar conversation .  I began to think of my other options. Where I live, in the West End, I rather enjoyed using the MTA fixed route bus in order to get into Stroudsburg, or surrounding areas.  the fixed route has changed it’s schedule and pick up and drop off places.  This means for me  getting to the bus stop is more difficult . When I think of these two opportunities changing, I feel that this is simply another  blow to not only my, but our, independence.  I do not know as of yet how I will get to the meeting, but I will not give up.  My wife offered to drive me to the meeting, but this means that she would have to take off from work to bring me. I do not want her to  do that .  I will get there but I want to do it with some portion of independence.
I guess this will be a long walk,but I will get there!
-  Michael Bryant

Making the Broadway experience Accessible

An organization in NYC is working to provide audio description  for Broadway shows.

 

Similar to the process used in movies and television, the narrators describe the scenes without dialog.

 

From the article:

 

 

"I try to be very specific about the details I describe," Day said. "Because you could talk forever, blah blah blah, but then they would miss the play."

 

 

read the article from 7 online.com – A Broadway experience for the blind

ACB Legislative Seminar 2009: An Advocacy Play by Play

 

This recent article provides additional information focusing on the “play by play” activities involved in meeting with representatives. 

 

Monroe County resident lobbies in Washington for the blind – poconorecord.com – The Pocono Record

ACB Legislative Seminar 2009:A Day on Capitol Hill

So, it’s finally the big day!  It was the culmination of at least two months
of preparing in an effort to become familiar with the issues concluding with
the Legislative Seminar. 

There are 19 representatives serving the interests of Pennsylvania
residents, two senators and 17 congressmen and women.  The 19
representatives were divided among the four groups which attended
representing the Pennsylvania Council of the Blind.  Most fabulous this year
is that I had the honor of meeting with two congressmen personally.  I met
with both Representatives Paul Kanjorski and Chris Carney.  The experience
with both was tremendous, though I must tell you that my visit with Paul
Kanjorski was exhilarating in so much as he was clearly interested not only
in the two imperatives he was asked to consider, but in issues concerning
blindness in general.  He asked informative questions and was thoroughly
impressed with the work being done by the American Council of the Blind and
its affiliates.  Of course and as always, he will support any legislation
which furthers independence of people who are blind or visually impaired.
Congressmen Carney also asked informative questions, showed a genuine
interest in the issues being presented and indicated that he would add his
name to the more than sixty co-sponsors of H.R.734, the Pedestrian Safety
Enhancement Act.  He also offered to contact Congressman Markey to inquire
as to the status of the 21st Century Communications and Video Accessibility
Act.  My third appointment was in Congressman Tim Holden’s office where I
met with his Legislative Aid, Courtney Williams.  She had clearly researched
the issues and was extremely well informed.  Her comments centered on the
fact that both imperatives seemed to be common sense to her. Yes, quite
refreshing!

All in all, it was a wonderfully productive day and as I’ve said dozens of
times before, the face-to-face contact made a huge difference in promoting
our agenda.  Moreover, I truly believe that our presence in and of itself
educates in a way that a phone call or email cannot possibly do.

So, let’s sit back now and watch the fruits of our labor flourish.  I will
be endeavoring in the next weeks and months to establish an email dialogue
with each office that I visited as a follow-up and to keep our local
representatives mindful of our concerns.

 

- Mary Ann Alexander